I remember my aunt coming to visit us in the hospital, she said "you have a really special boy there." I replied "yes I have three of them." Of course my aunt had good intentions in what she said, but I was feeling like my two "normal" boys were being left out. The outpouring of love we have received since having Zachary has been astounding and needed and appreciated. But I also want to have everyone feel equal. Not that he was more special because of how he was born. I will never discount the miracles we saw along the way and will continue to see throughout his life, but that does not take away from the family I already had.
It is very important to me that it doesn't become them and him. I want us to be a full unit. I realize Zachary will have more appointments and things that are going to be specific to him, but I don't want the other two to be lost in the shuffle.
I'm sure most families with a "special" baby feel the same way. How do you continue to be "normal" when so much has changed. I am thankful that my boys don't know any different. This is how their baby brother is. He has a boo boo on his back and don't touch it...that's all they have to watch out for. So it's probably me that makes more if it.
I am very thankful that at this stage in his life he doesn't require much extra care other than being careful with his back. He doesn't need a catheter, he doesn't have a shunt (although watching his head is a little nerve racking) and other than him peeing and pooing constantly, which makes changing a diaper more challenging, he is a wonderful new born.
So here's to my 3 wonderful boys, that are all miracles and will have their own challenges and exciting moments in their life whether they have spina bifida or not.
Well said! The sibling thing is something I'm always worrying about. So far, my girls are just like your boys - oblivious that the boo boo is sort of really important. Let's hope they never really realize it.
ReplyDelete