May 27, 2011


Potenti|al...this is a word that has been in my vocabulary recently. How do you reach it, when do you know you've successfully acheived your full potential. 
Peyton is a bright boy (and while I'm biased...he really is). And there have been a few conversations about reaching a higher potential. He is a whiz at math, he always thinks in numbers and is eager to learn more about math languages. However his marks at school don't refelct the amount of knowledge he has in his brain. They are not bad marks, but if you knew my kid you would be sure A's would be the letter of choice for math.  His teacher chatted with me this week and let me know, that while he knows all the concepts, he has a hard time expressing how he came up with the answer. He's a bit of a perfectionist (I have no idea where he got that from) and is afraid of saying the wrong thing. In his grade level it's not about knowing the answer but knowing how to explain the answer. All this is valuable to growing up and becoming well rounded, and I really appreciated his teacher letting me know. I
I told you that background story to bring you into the conversation and thought process I've had around full potential.
I spoke with Peyton about what his teacher said and asked him if understood what she was saying. Where is his full potential and was he at it...the short answer is no.
How do we measure it? Who gets to determine that full potential has been reached. Of course we go through this in our heads with Zachary, because he was born with obstacles put infront of him. But I never want to miss an opportunity with my other boys, pushing them to reach their full potential. So while I set up physio appointments and Dr appointments for Zachary making sure he doesn't miss one thing, may I strive to make sure my whole family reaches their full potential.

May we never settle...

May 10, 2011

So I know, I know...I pretty much suck at blogging right now. I was hoping after a couple of weak blogs I would be able to get on track and really have a great and profound blog to come back with a bang...Don`t hold your breath, I have no Bang.
Life has taken over lately with a little bit of sadness and a lot of busyness.
I don`t want to dwell on the sadness part, but I will fill out in. I have felt tired and run down, no energy and defeated by how SB has changed my world. Now before you gasp and think how could I write such a thing, let me see if I can put my thoughts into words. I am not worried about what Zachary can or cannot do, I am not feeling overwhelmed by Dr`s appointments, I am not discouraged about having a perfect baby that now has a scar...but I am hating the fight that waits under my next breath.  I don`t feel sweet anymore. I feel I am researching and trying to advocate for Zachary, that it has taken away from how I want to be. I feel jaded.
All my worst fears when I found out about the adventure we were going on.
I`m just not myself.  It is getting better, which is why I can now blog about it. :)

Zachary had surgery last Wednesday, it was the second stage of a Urology surgery he had in September.  We waited a long time to get in for this surgery, it was originally supposed be done in February (that`s a whole other blog post lol). It was a long day, as is any day that your child is having surgery. We took the older boys too, as our sitter is getting ready to move and we just thought it would be better to bring them along. They were so good and had a chance to play in the siblings play room. Zachary did great as usual, I`m always amazed at how well he does after we`ve had to starve him.
The surgery was successful and hopefully we won`t see the OR for a long time.

He still does not enjoy his AFO`s. And emotionally it`s been hard for me too. I know he will get used to them and never know what it`s like not to have them, but for the time being, it`  I wish the professionals would have had some foresight. I wish he started with the AFO`s when he was 7 or 8 months old. That way he would have learned to do everything he is capable of doing with them already on. Rather than him fighting to be able to do all he can and then stick these things on him, that make him start all over again. It is truly heart breaking.  Right now it`s one of the first things I would tell parents of an SB child...if you know they are going to need them, get them used to them right away.

One of my favourite finds came from a fellow SB mama. I absolutely love these for over his AFO`s, they are called skidders. Essentially they are like socks but with a rubber bottom. They allow his braces to not feel so bulky but provide a good tread. At first I was really sad because I only found them online and the shipping was more than the shoe. After searching around I found them at Walmart for $10...cheaper than online. I love a good find :)

We are starting some physio sessions, and I`m really hoping they get him going somewhere. I don`t have complete faith in out therapist, but I am glad to be seeing someone.
My goal is to get him independent...whatever that means for him, in his own time.

I haven`t even uploaded any pictures recently...but I do have a couple that I haven`t put on here, even if they are outdated.

May 1, 2011

I have much to blog about and no time to do it...
I need to update on Zachary and his AFO's
Zachary goes in for surgery on Wednesday
and a bit of life in general.

And hopefully I will soon,
but for now I wanted to leave this quote, because I quite liked it...

"Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know it so it goes on flying anyway."

— Mary Kay Ash